Willie Mae Goodman decided to send her daughter Marguerite to the Willowbrook State School when Marguerite was four years old. Marguerite was born with developmental disabilities, and doctors argued that Willowbrook was an appropriate place for her.
Conditions for Marguerite, and other children and adults at Willowbrook, were horrible. The facility drew criticism from Senator Robert Kennedy, who described it as “not fit for animals,” as Mrs. Goodman recalls.
Mrs. Willie Mae Goodman heard many people speak of her daughter’s death. When she was an infant and a toddler, doctors encouraged Mrs. Goodman and her husband to place Marguerite in an institution. Her doctors predicted that Marguerite would not live beyond two years, and they told her parents that they could send her away.
In 1977, the New York City Board of Education was the focus of the “largest civil rights investigation of a public educational institution ever undertaken.” The Office of Civil Rights in the federal Department of Health, Education, and Welfare studied the New York schools and found that the school system had “violated Title VI of the Civil Rights Act of 1964, which prohibits discrimination on the basis of race, color, national origin; Title IX of the Education Act of 1972, which prohibits discrimination on the basis of sex; and Section 504 of the Rehabilitation Act of 1973, which prohibits discrimination against physically or mentally handicapped individuals.”
Marguerite Goodman lived at the Gouverneur Hospital in lower Manhattan. Her mother, Willie Mae Goodman, organized to improve Marguerite’s life at Gouverneur. This article by the New York Daily News identifies the many ways she and other family members of residents worked to change Gouverneur.
Willowbrook opened in 1947. The number of people living at institutions in and around New York City increased in the early twentieth century as physicians frequently told parents of “mentally retarded” children to send them to institutions where they could be rehabilitated. At this time, public schools could still turn away children if they thought they were “uneducable.”1
